What Lupus Means To Me 5/23/14

Lupus always makes things in life interesting but you have to keep on going on and keep a positive outlook on life. You make jokes where you can and learn to appreciate the little things that some people may not think to be as celebratory. I have always said that you need to learn how to play a poor hand well. You are dealt the hand you are given and you can either fold or keep playing. I choose to keep going, I don’t see any other way. There are many things that have changed over the past couple of years. People always say “Oh I’m sorry you have this.” or ask “If you could wish it away would you?” I am not sorry I have this, I believe this is part of me and part of my character. I have had some struggles but the fight has made me stronger and has made me who I am. I believe that I can help people understand this disease and get the word out there. Just getting the word out there will help so many other people. People like me get looks when we tell people what we have because not everyone knows what Lupus is. When I try to explain it to them, they get this kind of puzzled look on their face. We are fighting a battle of what the Lupus Foundation has labeled the cruel mystery. I would love to get the recognition out there that other diseases have.


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